Af Tammy Rome den 10. juni 2016 – https://migraine.com/blog/why-it-is-not-legitimate-reason-to-miss-work/
Udvalgt indlæg fra bloggen www.migraine.com i forbindelse med Migraine Awareness Month juni 2016.
Jeg ville elske at stille det spørgsmål (hvorfor er migræne ikke en legitim grund til at melde sig syg fra arbejde?), til alle de arbejdsgivere jeg kan finde. Mange af os er blevet behandlet, som om vi lå og drev den af eller overdrev vores symptomer for at undgå at gå på arbejde eller passe andre forpligtelser. Med mindre du oplever de stroke-lignende symptomer, der er ved hemiplegisk migræne*, er der ingen andre, der faktisk kan bekræfte, at dine symptomer er ægte. Jeg har til og med hørt om sundhedspersonale, der anklager mennesker med hemiplegisk migræne for, at de faker symptomerne!
Hvad sker der for den komplette mangel på empati for den 8. sygdom på listen over de mest invaliderende i verden**? Hvad har vi gjort for at fortjene den behandling?
En del af problemet er, at mange stadig tror, at migræne ’bare er en hovedpine’. Der er ingen der anser hovedpine, som værende et seriøst problem med mindre, der er bevis for en svulst, et stroke, en aneurisme eller en hjernerystelse. I fraværet af dette er den typiske reaktion ’du ser da ud til at have det fint’. Du og jeg ved, at vi ikke bare har det helt fint. Lys og lyd sætter gang i den dunkende smerte i dit hoved. Bølger af kvalme truer med at blive til opkastninger, hvert øjeblik det skal være. Det føles som om du umuligt kan løfte hovedet og den mindste bevægelse giver skarpe jag i hovedet. Trangen til at gemme dig i et mørkt rum med en ispose på hovedet er uimodståelig. Tanken om at skulle arbejde er helt umulig. Bilkørsel er udelukket. Intet job i verden kan passes under et migræneanfald.
Vi er nødt til at uddanne arbejdsgivere om omfanget af migræneanfald, lære dem hvor simpelt det er at lave tilpasninger for den enkelte og hjælpe dem med at forstå, ’at det at tage en pille’ ikke gør medarbejderen frisk efter nogle minutter. Selv i de bedste tilfælde, hvor triptanerne virker, kan der gå adskillige timer, inden en migrænepatient er i stand til at udføre sit arbejde.
Eftersom jeg ikke tror på, at det hjælper at beklage sig uden at komme med en mulig løsning, vil jeg gerne tilbyde et uddannelsesværktøj for arbejdsgivere. Jeg skrev brevet herunder for nogle få år siden, da jeg stadig forsøgte at finde ud af, hvilke tilpasninger der kunne hjælpe mig til at kunne fortsætte med at arbejde. Del gerne brevet med din arbejdsgiver.
Jeg vedhæfter brevet på engelsk og nævner nogle få af Tammys pointer her. Hun skriver blandt andet:
Kære arbejdsgiver! Du har en person med migræne ansat. Migræne er en neurologisk sygdom, der kommer i anfald. Når jeg har anfald, kan jeg have svært ved at passe mit arbejde, men du kan hjælpe mig og andre mennesker med migræne ved at indføre forskellige tilpasninger. Det er forskelligt, hvad der trigger migræne fra person til person. For eksempel kan det hjælpe at have mindre skarpt lys, mindre støj eller mindske lugte fra parfumer f.eks. ved at indføre forbud mod parfume på arbejdspladsen. Det kan også være en idé at have et rum, hvor jeg kan hvile mig, når migræneanfaldet starter og mens medicinen virker sådan, at jeg ikke er nødsaget til at gå hjem fra arbejde, når jeg får et anfald. Har du en person med migræne ansat, så tag en samtale om, hvad der kan hjælpe vedkommende. Har I et godt samarbejde på det punkt, så kan vedkommende være produktiv også selvom han eller hun indimellem har migræneanfald.
*Hemiplegisk migræne er en sjælden form for migræne med aura, hvor der er forbigående halvsidig lammelse.
**Migræne er nummer 8 på listen over burden of disease.
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